You probably read my welcome note and have been thinking what the hell is Discoid Lupus Erythematosus??. If you are its really not surprising a lot of the people have no idea what it is.
QUICK 411 ON WHAT LUPUS IS
Lupus in general is a Polygenic Autoimmune inflammatory disease. Meaning the immune system of someone suffering with lupus will turn against parts of the body its meant to protect. It’s been given the nickname ‘Great Imitator’. This is because the symptoms of lupus at times resemble symptoms of other illnesses in some cases making it difficult to diagnose. Millions of men and women across the world are affected by lupus. With women of colour being 4 times more likely to be born with Lupus.
Although Lupus is a disease you are born you won’t know until the symptoms start to show this generally happens between the age of 15-44. When most people think of an illness or disease their first question is ‘can I catch it?’. Let me make it crystal clear. It is not contagious. It is a disease that unfortunately millions of people are born with that affects the immune system making them more likely to become ill. when I was diagnosed my doctor didn’t know how lupus was created and disagreed that is had anything to do with genetics. Whilst doing research and taking on the fact my Nan had lupus i definitely think genetics has a lot to do with it.
There are several types of lupus which comes in different forms such as:
Systematic Lupus Erythematosus
This type is classed as the most serious and dangerous type of lupus as it effects the immune system, organs, bones and skin. It has the ability to make organs fail or become hard to function. It can give arthiritis like symptoms, making your joint swell and give you discomfort making it hard to walk or to do everyday tasks. It causes Fatigue, loss of appetite and weight loss. Aswell as several other symptoms
Chronic Cutaneous Lupus Erythematosus (CCLE):
Discoid lupus Erythematosus (DLE), subacute Cutaneous Lupus Erythematosus (SCLE) or Acute cantaneous lupus Erythematosus (ACLE)
These types of lupus all solely affect the skin. It leaves a red rash on your face, lesions or scaring. For some they will have to deal with three stages. For others they may just have to deal with just the red rash. The rash is called a butterfly/wolf mark . As it usually covers both cheeks, the bridge of your nose and some of your forehead.
This marking can lead to a lot of scarring and loss of pigmentation. If you are as lucky as me to have DLE then you will definitely get the lupus butterfly stamp of approval. The rash isn’t restricted to just your face you can get the rash on any part of your body. Including lesions on your head which can lead to permanent hair loss.
Drug induced lupus
This can be caused by taking particular medication. Good thing about this type of lupus is it generally goes away once you stop taking the medications.
This type of lupus can affects newborn babies. 40% of mothers with lupus can give birth to a child with neonatal lupus. The symptoms can range from a skin rash or liver problems to low blood count but tends to disappear after several months without leaving any life long effects. Or any effect for that matter.
If you have a Type of CCLE you are able to develop symptoms for systematic lupus. A. Generally 5- 10% of The DLE Crew will Graduate and join the SLE CREW. Unfortunately that is NO cure for lupus, BUT there is some medication out there that will help to control the flare ups.
If you are anything like me that isn’t much of an option as I dislike taking tablets or feeling as though I’m a Guinea pig. I am a natural, herbal remedy kinda Girl. But that route isn’t for everyone.
If you are someone that has lupus and you find it a pain feel free to send me a message. You aren’t alone 😊.
If I haven’t scared you off then stay tuned for more post on Lupus.